ID.
The item to be evaluated must have lasted or be expected to last at least 12 months unless otherwise specified.
1. Specialized care, at least one review a year.
2. Medication for chronic use, prescribed by primary or hospital care.
3. Hospitalizations in the last 12 months.
4. Specific feeding needs
5. Need for specific respiratory care.
6. Psychomotor development, mobility problems, functional limitations
7. Visual pathology or alteration of visual acuity with impact on daily life
8. Other devices or techniques.
9. Need for specific therapies.
10. Special educational needs
11. Life expectancy of less than 1 year or patient whose death can be expected in the following 12 months.

The cut-off point to consider a patient as CCP was established at 6.5 points, which obtained a sensitivity of 98% and specificity of 94%.

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1.
Godoy-Molina E, Fernández-Ferrández T, Ruiz-Sánchez JM, Cordón-Martínez A, Pérez-Frías J, Navas-López VM, et al. Scale for the identification of complex chronic pediatric patients (PedCom Scale). Pilot study. An Pediatr (Barc) [Internet]. 2022 Sept 1 [cited 2023 Dec 10];97(3):155–60. Available from: http://www.analesdepediatria.org/es-escala-identificacion-del-paciente-pediatrico-articulo-S1695403321003775
Classification.

3M Clinical Risk Groups.

Complex chronic patient from 6 to 9 (excluding 8, oncological patients).

Care planning. Individualized care plan.

Stratification of cases Kaiser Permanente.

Vaccination.

Seasonal vaccines. Flu and SARSCoV2.

VNP23.

Neurological.
Digestive.

Nutritional assessment.

Gastrostomy.

Constipation.

Respiratory.

Cough-assist.

Respiratory support.

  • NIV.
  • Mechanical ventilation.

Criteria for obtaining respiratory samples.

  • Patients in need of invasive ventilation.
  • Patients with bronchiectasis or severe recurrent respiratory infections.
Rehabilitation.

Botulinum toxin.

Orthoses, motorized chairs, and other orthoprosthetic material.

Familiar.

Care plan for the main caregiver.

Sibling care plan.

Social.
Spiritual.

Ask about religiosity.

Home hospitalization and palliative care.

Pain.

Management of secretions.

Advance decision planning.

Intensive and non-intensive child. Action plan in the face of progressive deterioration that threatens the independence of vital functions.

  • Need to administer liquids and/or food after losing the ability to swallow.
    • Through a tube through the nose.
    • Through an intravenous line.
    • Through a gastrostomy in case of irreversibility to the previous functional situation.
  • Need to use a urinary catheter.
  • Need to breathe with the help of a machine.
    • Through a mask that prevents oral communication but allows consciousness.
    • Through an endotracheal tube that prevents oral communication and consciousness (sedation).
    • By performing a permanent tracheostomy in case of irreversibility to the previous functional situation.
  • Need to use continuously administered medications (pump) to maintain cardiocirculatory function (inotropes).
  • Duration of advanced treatments in time if a situation of absence of consciousness and irreversibility to the previous functional situation occurs.
  • Willingness to donate organs.
  • Desired place of death and accompaniment, spiritual planning.
  • Pain, consciousness and palliative care at the end of life (use of secretion aspiration devices and other techniques).

Resuscitatable and non-resuscitable child. Anticipated action plan in the event of sudden events that stop vital functions.

  • When in doubt, the urgent care team always initiates resuscitation. The decision to stop resuscitation once it has started is equivalent to the decision not to resuscitate.
  • Need to resume cardiological functions. Cardiac massage.
    • Need to use continuously administered medications (pump) to maintain cardiocirculatory function (inotropes).
  • Need to resume respiratory functions. Ventilation.
    • Need to maintain recovery by breathing with the help of a machine.
      • Through a mask that prevents oral communication but allows consciousness.
      • Through an endotracheal tube that prevents oral communication and consciousness (sedation).

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7844190/

https://theconversationproject.org/wp-content/uploads/2020/12/PediatricGuide.pdf

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Trenchs Sáinz de la Maza V, Cambra Lasaosa FJ, Palomeque Rico A, Balcells Ramírez J, Seriñá Ramírez C, Hermana Tezanos M aT. Therapeutic limitation in intensive care. An Pediatr (Barc) [Internet]. 2002 Dec 1 [cited 2023 Dec 10];57(6):511–7. Available from: http://www.analesdepediatria.org/es-limitacion-terapeutica-cuidados-intensivos-articulo-S1695403302787080

https://www.analesdepediatria.org/es-etica-reanimacion-cardiopulmonar-pediatrica-articulo-13097359

Medical care protocols.