On the Clinical Trials website you can search for clinical trials carried out or in progress classified by disease of interest, obtaining information about the centers in which they are carried out, as well as the results obtained when they are already concluded. On the REec website, you can consult the Spanish registry of clinical trials, sponsored by the...
Author archives: Alberto Alcantud
Grant CUME (care of children with cancer or serious illness).
List of diseases for which it can be requested.
Scholarships and grants MEyFP
There are grants for students with specific educational support needs, announced annually by the Ministry of Education and Vocational Training, between July and September. These are direct grants for students (including those with ADHD) who require certain supports during part or all of their schooling …
Standardized scores.
There is a mobile application called NormScales that allows transformation between different scoring systems, including percentiles. There are also web resources where calculators can be used to convert scores from one system to another.
Pseudotherapies.
The offer of pseudotherapies in neurodevelopmental disorders is wide and not without consequences regarding financial cost, opportunity cost, and the ethical implications it entails, so professionals must remain informed and recommend evidence-based treatments. The Association to Protect Patients from Pseudoscientific Therapies offers a list …
Slt health.
The Conselleria de Sanitat has a 2018 speech therapy health treatment agreement in force for people over 6 years of age in the following cases: In people over 4 years of age, in case of dysphagia as a consequence of skeletal-structural lesions of congenital origin or acquired disorders and those functional disorders originating from the neonatal phase or developed during...
Compassionate use, medication, foreign and drug use out-of-specification (out-of-the technical data sheet).
The AEMS link explains the three concepts, as well as in which cases it is necessary to request authorization and through which channels it should be done. Common examples in child neurology: Ethosuximide syrup (not marketed in Spain), available from hospital pharmacy as an foreign medication. Cannabidiol in Rett syndrome (for patients on treatment …
Master formula
Orphan drugs
https://www.ema.europa.eu/en/human-regulatory/overview/orphan-designation-overview
Procedure for the application of free choice of doctor.
https://www.gva.es/es/inicio/procedimientos?id_proc=2985