The AEMS link explains the three concepts, as well as in which cases it is necessary to request authorization and through which channels it should be done. Common examples in child neurology: Ethosuximide syrup (not marketed in Spain), available from hospital pharmacy as an foreign medication. Cannabidiol in Rett syndrome (for patients on treatment …
Category archives: Clinical guide
Master formula
Orphan drugs
https://www.ema.europa.eu/en/human-regulatory/overview/orphan-designation-overview
Procedure for the application of free choice of doctor.
https://www.gva.es/es/inicio/procedimientos?id_proc=2985
Procedure for the application of 2nd medical opinion
https://www.gva.es/es/inicio/procedimientos?id_proc=3175
Procedure for referral to a CSUR and SIFCO
Procedure for referring patients to CSUR. List of national reference centers. Health cohesion fund decree (SIFCO). CSUR with special relevance in pediatric neurology for the Valencian Community. CSUR of H. U. La Fe: Refractory epilepsy (children and adults). Surgery for movement disorders (children and adults). Hereditary ataxias and paraplegias …
Continue reading «Procedimiento de derivación a CSUR y SIFCO»
Targeted screening tests.
Neonatal screening program.
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Therapeutic resources and non-drug for children with t. neurodevelopmental disorders.
On the AutismSpeaks website, there are resources for parents, children, and professionals, translated into Spanish. On the APACV (Association of Parents of Autism CV) website, they have guides for psychopedagogical and educational intervention.
Vaccines
On the AEPED online vaccine website, there is a chapter dedicated to vaccination in children with chronic diseases, which covers special vaccination indications in neurological patients.