Category archives: Treatment
Clinical Trials
On the Clinical Trials website you can search for clinical trials carried out or in progress classified by disease of interest, obtaining information about the centers in which they are carried out, as well as the results obtained when they are already concluded. On the REec website, you can consult the Spanish registry of clinical trials, sponsored by the...
Pseudotherapies.
The offer of pseudotherapies in neurodevelopmental disorders is wide and not without consequences regarding financial cost, opportunity cost, and the ethical implications it entails, so professionals must remain informed and recommend evidence-based treatments. The Association to Protect Patients from Pseudoscientific Therapies offers a list …
Slt health.
The Conselleria de Sanitat has a 2018 speech therapy health treatment agreement in force for people over 6 years of age in the following cases: In people over 4 years of age, in case of dysphagia as a consequence of skeletal-structural lesions of congenital origin or acquired disorders and those functional disorders originating from the neonatal phase or developed during...
Compassionate use, medication, foreign and drug use out-of-specification (out-of-the technical data sheet).
The AEMS link explains the three concepts, as well as in which cases it is necessary to request authorization and through which channels it should be done. Common examples in child neurology: Ethosuximide syrup (not marketed in Spain), available from hospital pharmacy as an foreign medication. Cannabidiol in Rett syndrome (for patients on treatment …
Master formula
Orphan drugs
https://www.ema.europa.eu/en/human-regulatory/overview/orphan-designation-overview
Therapeutic resources and non-drug for children with t. neurodevelopmental disorders.
On the AutismSpeaks website, there are resources for parents, children, and professionals, translated into Spanish. On the APACV (Association of Parents of Autism CV) website, they have guides for psychopedagogical and educational intervention.
Strategy of Acquired Brain Injury
In the Valencian Community, there is no specific strategy for acquired brain injury in childhood. The current planning can be found on the Generalitat website and specifically excludes children under 16 years of age.
Early Care
Early childhood intervention is indicated for children with neurodevelopmental disorders, or at risk of suffering them, between 0 and 6 years of age, except for those children who from 3 years of age already have public resources of some kind (school, MEC scholarships, etc.). The indications and forms are available on the website …